for Human Research Protection (AHRP) is a national network of lay people
and professionals dedicated to advancing responsible and ethical medical
research practices, to ensure that the human rights, dignity and welfare
of human subjects are protected, and to minimize the risks associated
with such endeavors.
Over the past decade, the explosion of biomedical research has not been accompanied by an effective system of oversight or enforcement to protect those who volunteer. A body of well-documented evidence shows that in numerous instances the rights of human subjects have been violated. Unsuspecting research volunteers have sometimes suffered grievous injuries and even preventable death.
The causes are clear:
is increasingly driven by commercial concerns.
of Interest are ubiquitous.
of risks may be incomplete.
safeguards have been violated.
by Institutional Review Boards has failed to prevent ethical violations
even at major research institutions
(e.g., University of Rochester, University of Pennsylvania, Duke University, University of Oklahoma, Johns Hopkins University, Fred Hutchinson Cancer Center, Harvard University, and the National Institutes of Health).
This year, more than 15 million Americans will be recruited into clinical trials.
The AHRP mission is to stand up - and speak out - for the human rights of research subjects of human experiments, especially those who are vulnerable and /or susceptible to manipulation and exploitation. Those who are incapable of exercising their right to informed consent are in greatest need of protection from research abuse
AHRP is the best-known, most visible, proactive citizens' watchdog organization bringing to public attention - through our daily Infomails - issues affecting the safety of people in clinical trials.
We provide a public awareness forum through education, media exposure, and appeals to conscience and social justice, by,
Insofar as nearly all of the AHRP's work is performed by unpaid volunteers, who are donating both time and other resources to the organization, we offer a unique point of view untarnished by conflicts of interest: none of us has a direct financial interest in any medical research enterprise.
The Alliance for Human Research Protection is a nonprofit, tax-exempt educational organization under Section 501 C-3 of the Internal Revenue Code.